Yesterday, Shane said to me, “Mom, since I don’t see Daddy very often, can I have some special time with him today or tomorrow?”
“I think so,” I told him. “Perhaps you should ask Daddy.”
Bill was sitting right next to me. He didn’t ask Bill. And Bill, of course, didn’t hear the question. He was on the computer, otherwise focused.
“Bill,” I said, “did you hear that?”
“Huh? What?” Bill mumbled, looking away from the computer screen, as if we had distracted him from something very important.
“Shane would like to have some special time with you,” I told him. “Do you think you could do that?”
“Sure,” Bill said. “Just give me a few minutes.”
Eventually, they had some special time together. They went shopping for Pokemon cards and Shane was happy as could be. But I had to wonder how their special time works together.
Dylan has ADHD, and he has been diagnosed with it, so Bill probably has ADHD, too. He’s never been diagnosed, but the more I learn about Dylan, the more I learn about Bill.
For whatever reason, it is incredibly frustrating with Bill. I feel like he should have outgrown some of this disorganization, this inability to hear what’s being said to him – or even around him. Like he should be over it by now. Like it’s his fault, since he hasn’t figured out a better way to be.
I never worry about Bill and Dylan together. They think the same way. They communicate the same way. Dylan is never ignored – or if he is, he doesn’t notice it.
Shane, however, thinks differently. Between vision processing disorder and his generally quiet, focused, philosophical demeanor, Shane is different than Bill.
We were in a line for a ski lift this weekend for half an hour. We got in the singles line, hoping it would be faster. Bill got in front of Shane and I was four people in front of Bill. I looked back several times. Not once did Bill turn around to talk to Shane, the little guy behind him, all alone in the line.
It was prime “special time” for the pair, but Bill didn’t even think about it. He was focused on getting to the front of the line, moving his skis three inches at a time.
I treasure that time with Shane – every moment that we’re stuck in a line together, or in a waiting room, or having nothing to do. We make up games, talk about our favorite things, plan for upcoming vacations (even if they’re months away).
Shane and I think the same way. It’s easy for us to have special time together – anytime.
Bill and Shane are going to have to find their own way, forge their own type of relationship.
Sometimes for me, though, it’s just painful to watch.
It snowed. It snowed and it snowed and it snowed. Finally, it stopped. Then it snowed some more.
While this is a big issue for adults, and there are concerns about road conditions and work, my kids were overjoyed. School was cancelled before a single flake fell, and we’ve been given a 5-day vacation.
We have a wonderful neighbor who helps to plow out our driveway, and Bill and I started shoveling right away.
Our trampoline was covered in more than a foot of snow. So I sent out the boys with shovels to rediscover the bounce in the trampoline.
Half an hour later, Shane came inside. “Can we be done now?” he begged.
I looked outside. “It’s still covered in snow!” I exclaimed, seeing the sag of the center almost to the ground.
“But we’re tired and we want to go sledding!” Shane said.
“Ten more minutes of shoveling,” I told them. “Then you can get your sleds.”
Dylan whined and groaned and moaned from where he lay on his back in the snow. “We’ve been working SO HARD this WHOLE TIME!” he groaned. “It’s going to take another THREE HOURS to get all this snow off!”
“You have ten minutes,” I told him, and closed the door.
I set the timer.
Ten minutes later, I opened the door and yelled, “Time’s up! Go play!”
Dylan lay dramatically on his back, unable to move. Shane trudged across the yard to get to his sled, then threw himself down on the deck, not moving while he waited for his brother.
For the most part, I ignored them.
Ten minutes later, the boys were beaming as they plodded through the snow and rode their sleds down the front porch. Their smiles were brighter than the reflection of the snow. They played and rolled around and sledded down snow mounds. They had a ball.
If nothing else, I learned that I should not give in to their whining, nor should I make a big issue of yelling back at them while they are complaining. They got their work done, and then they played. And they felt good about themselves, having done a good job. And they had a blast playing, too.
Kinda like life.
Valentines Day is coming, and my seventh grader has a girlfriend. They think it’s an actual holiday.
“We want to go to Caribou and then go to the movies,” Dylan said.
“You can’t just go to Caribou and then go to the movies,” I said. “You can walk to Caribou, but how are you going to get to the movies?”
“I thought you could take us,” said Dylan.
I’m starting to see how teenagers get chauffeured all over creation without any thought to the parents’ well being.
“Let me get this straight,” I said. “You want me to let you go to Caribou after school, for however long you wish. Then you want me to come and pick you up and transport you across town to the movies. Then I suppose you want me to come back two hours later and pick you up.”
“Yeah,” he said.
“Okay, Dylan,” I said. “You can do something on Valentine’s Day. But please think of the details. Pick a movie that you want to see. Find out what time it starts. Figure out where you want to eat preferably near the movie theater, and how long it will take to eat. I need to know what time you need to be dropped off, and what time you need to be picked up. And also, I need to hear from your girlfriend’s mother, to be sure this is all okay with her.”
The whole conversation took place last night. It is now 18 hours later. Dylan has decided to eat somewhere near the movie theater. He doesn’t know what movie he’s going to see, or what time it starts. I haven’t heard from girlfriend’s mother. It would be nice if we could each take a driving shift.
Then there’s the concern that I’m dropping off two pre-teens for several hours. Alone.
“It’s Valentine’s Day, Mom,” Dylan said. As if it were just a step lower than Christmas on the scale of specialness.
And yet, he hasn’t worked out a single detail. Having a husband who has planned exactly one date in 15 years, I am now convinced that the “planning gene” – or lack thereof – is genetic.
After posting last week about dizzy spells, I started to feel a tad nauseous and very tired. I convinced myself that I was having a heart attack at 10:30 p.m., and instead of going to bed (which would have been the normal, better idea), I went to the E.R. By the time I got there, my heart was racing, my left hand was feeling numb and tingly and I was sure I was going to die.
I was not having a heart attack.
In fact, I was not having anything at all, except that same vertigo I’d been dealing with for two weeks.
But in my panicked state, and with a five-hour wait ahead of me in the E.R. waiting room, I somehow caused my symptoms. I mean, my hands were actually losing feeling. I went up to the check-in window again and begged to be seen, convinced that I could drop dead at any minute.
They called me in quickly after that, and did a quick EKG. The EKG determined that my heart was fine – so I went back out into the waiting room, at which point my symptoms completely disappeared and I went to sleep in a chair.
Over the course of the next 8 hours, I got a CAT scan of my brain to rule out tumors and a chest x-ray, in case the EKG missed something. They took blood, too. They ruled out everything that might cause dizziness – and then some.
So, you say, what the HECK does that have to do with parenting?
Besides announcing to the world that I possibly had a psychosomatic panic attack, the only thing I thought about in my state of possible heart-attacked-ness, is that I had to be healthy to take care of my kids. I didn’t think (sadly) about my husband, who would of course be lost without me. I didn’t think about my parents, who were living it up in the Carribbean. I did text one friend, who awesomely answered texts until 1 a.m., but I wasn’t worried about her living without me.
I was only worried about the kids. It’s like my entire purpose for living is that those kids need me. And what if – and this COULD happen! – what if the kids grow up? What if they do exactly what they are supposed to do, and grow up, and become self-sufficient? Then what will I do?
I always said, this is why I play softball – so I’ll have a life outside of my kids. But gosh, it’s winter. And softball is only going to carry me so far.
I guess I’m writing this just to admit that I now know that my kids are my only reason for living.
And, thank God – and there was much prayer while I was in the hospital, so I am thanking God – I have another day to live. For them, or whatever – I still have the chance to be here for them.
Just for today.
I have DPPV, which sounds awful, but it’s not. It’s just this inner ear thing that causes me to sometimes feel dizzy for no good reason.
So for a week, I’ve been having this DPPV – again – and I know what it is, but I can’t help thinking, What if this time, it’s a brain tumor? Then I worry that I will die in my sleep.
And my next worry is Shane. I can keep myself up for hours with the thought that I might die, and no one will be here to take care of Shane.
My husband, Bill, is a wonderful man. He takes care of the house and the cars, plus he runs a bank in his spare time. He’s kind and caring and compassionate. He’s smart, funny and polite. He’s a great role model.
But he is also a lot like Dylan. In a way, this is great. He’s a genius and can figure out anything. He can fix anything. But he has to be reminded about simple stuff, like throwing away the rotten food in the fridge. Things are in piles everywhere because he doesn’t throw anything away, and he doesn’t organize anything. And Bill is distracted by everything. So he can relate well to Dylan.
Shane is another story. Shane is calm and reserved and quiet. When he does choose to speak, Bill talks right over him.
At dinner, Shane will say, “Remember that time when…” and Bill will blurt, “So what did everyone do in school today?” in his booming voice. He simply doesn’t hear him, even when the two of them are alone.
Shane is an introvert. Like me, he prefers solitude and deep thought to being swallowed up by a large group of people. Bill is an extrovert, and gets his energy from people. Bill can’t understand being exhausted by people, or wanting to step away from them for clarity. Bill loves Shane deeply. He just doesn’t always know how to listen.
Shane is also a genius, but things come to him in a rather inside-out way. His thinking jumps from tiny details directly to life-affirming profundities. Shane’s thoughts are sometimes so monumental that only a handful of people could grasp them out of context. They’ll start with something simple and end with something very deep – and most people get the simple but miss the deep.
This is not a real example. But Shane will say something out-of-the-blue like, “I think that the evil guy from the movie last night is just like Snape from Harry Potter. Because even though Snape isn’t really evil, he said that thing about treating Harry like any other student. And Harry isn’t really like any other student, which is just like when the evil guy looked at the girl and smiled and did that thing with his eyebrows. He knows more than pure evil, you know?”
And I will, oddly enough, know exactly what Shane is talking about, and be able to then do a comparison between the two characters, and we will talk for awhile about what constitutes good and what constitutes evil.
Bill, however, would say “uh-huh” – like he does to me – then ask if Shane thinks it is going to rain today.
When Shane was in kindergarten, his teacher made a comment that stuck with me because it was the first time I realized that Shane was like me. She said, “I just love his ideas. They’re so out-of-the-box.”
Up until kindergarten, I thought Shane was the only normal person in the family. When she said that, I realized that he was just different in the same way that I was different – which is why it is so easy for me to relate to him.
He needs me. So it’s a good thing I’m feeling less dizzy today.
Dylan comes home from school and tosses himself onto the couch with his iPad. He doesn’t get up for an hour, even though Shane and I are pleading for help with a jigsaw puzzle. Finally Dylan comes in, looks at the puzzle, deems it worthless and goes back to his game.
He has a quiz in science tomorrow. I’ve asked my husband to study with him, which he says he has done. So I decide to give a quick pop quiz.
“Dylan, get me your binder,” I yell cheerily. He grunts. A few minutes later, I yell “get me your binder” less cheerily.
A moan escapes him, as if I’ve asked him to carry the couch to the kitchen.
He throws the 20-pound binder onto the table. “I don’t know why we have to do this,” he whines.
“Flip to the science section,” I say.
“I don’t know why we have to flip straight to science,” he says, in great pain.
“Get me your skeletal system review sheet,” I say.
Now he is really irritated. “I don’t have a skeletal review sheet!” he says. “We never did anything like that!” He flips through angrily, and pulls out a drawing of the skeletal system.
“All we have is this warm-up,” he says, tossing the half-sheet of paper at me.
“What’s this?” I ask, pulling out the piece of paper behind the drawing.
“It’s just another warm-up!” he whines, wandering away from the table and into the next room. It’s two pages, full of information on the skeletal system.
I yell to him in the next room, reading the first question verbatim.
“We never even learned that!” he moans.
“You did,” I say. “I’m reading from your paper.” I ask him another question from further down on the paper. He answers incorrectly.
“No,” I say. Then I read him another question, and another. He guesses, and sometimes gets something close to the answer, but obviously has no idea how the skeletal system works, what bones are made of, or anything else about the functions of the skeletal system.
“Here,” I say, plopping down the paper in front of him, onto the puzzle he’d once deemed unworthy – which now has his full attention, so that he may escape the agony of studying.
He groans. He grunts. He looks at the paper for less than a minute.
We try again. I quiz him briefly, before realizing he still can’t answer any of the questions. Audible agony continues to escape him. He doesn’t open his mouth to speak, so we can hear nothing more than grunts.
“I don’t want to do this either,” I tell him.
“Then don’t,” he says. “Why don’t you just let me figure it out by myself?”
I think, because you are NOT figuring it out. You are sitting on your butt playing video games. You are not learning to study, or trying to do better in school. You are failing and you are treating me like crap for trying to HELP YOU.
I say, “I have waited four months for you to figure it out, and you haven’t done it yet. So I am going to continue to help until you do.”
Then I walk away. I give up. I call Bill on his cell phone. After less than a minute, Bill determines the problem. It’s not unfamiliar.
Bill says, “Do you want me to deal with it when I get home?”
“Yes,” I say. “If I have to deal with it for even another minute, I may put him through a wall.”
Bill comes home. Over dinner, I declare that Dylan will not play any video games for the rest of the week. There is some discussion about Dylan’s giving up video games entirely until he learns to study.
We talk about how we don’t know what quizzes he has, except this one. We talk about him getting low grades in social studies and – oddly enough – chorus. There is more discussion about Dylan’s attitude, but he continues to mumble, roll his eyes and grunt.
I took him off the medication to avoid this behavior. It’s not as all-consuming and despairing as it was when he was on stimulants, but it is just plain rotten. He may as well have TEENAGER stamped on his forehead in flashing, neon green ink.
Eventually, Bill quizzes him on the skeletal system. Somehow, they get through it. Bill gives a ridiculous lecture about respect that Dylan never hears, then they part ways.
Dylan is likely to get a much better grade on his test, thanks to all of this pushing and prodding – but it is only thanks to me. And honestly, having lived through school and studying once already, I don’t know if this is worth it.
Shane and I were in the car today, on our way home from a two-day trip. We were trying to figure out when (and where) to eat.
I said, “The GPS says we have 2 hours and 15 minutes to go. The city with all the restaurants is 45 minutes from home, and we’re going right past it. So do the math. Figure out how long it will take us to get to the restaurant.”
He did a quick calculation. “It would take one hour and 35 minutes.”
I did the calculation myself. The 35 confused me. In my calculations, it was an hour and a half away. I wasn’t as worried about his inaccuracy as I was curious about how he’d arrived at his answer. So I asked him.
“I just subtracted,” he told me. “I got 95 minutes, which is an hour and 35 minutes.”
He’d taken the number of minutes in an hour, multiplied it by 2, then added 15 to the total. Then he subtracted. He’d figured it out in just a few seconds, but it pained my brain just to think of it.
“Don’t you have a clock in your head?” I asked. Shane had no idea what I meant. So I explained that I had a visual image of a clock in my head – which, now that I’m admitting it out loud, may be kind of strange.
But my clock moves pretty easily in 15-minute increments, so I can visualize how long it will take to get from one place to another, just by “seeing” it on the clock in my head, and watching the hands go around.
Then I had a sudden, horrific explanation for Shane’s thinking.
Shane grew up on digital clocks. We do have a clock or two with hands, but for the most part, he uses clocks that display numbers only. His favorite time, in fact, is 11:11, because it is the only four-digit repetition on the digital clock. He also enjoys 1:23 and 12:34. He can’t visualize a clock with hands because he grew up on clocks without hands!
While I was realizing this, and attempting to explain it to my 21st-century son, he said, “Oh, I know what I did.”
“What you did with what?” I asked.
“I subtracted 40 minutes instead of 45,” he said. “It would take us an hour and a half to get to the restaurant,” he said.
And how long, I wonder, will it take to create an image of a clock in his head, so that he can tell time quickly and accurately without needing to figure out the numerical value of an hour?
Shane had a vision processing disorder when he was born, which continued well into second grade. I wonder if not having a clock in his head also means he doesn’t have visual images in his brain, for example, to represent words?
Maybe his visual processing screwed up the way he processes all kinds of things – and maybe he’ll never have the ability to visualize things the way I do. Maybe it’s the reason he can’t remember song lyrics, and the reason he can’t remember people’s names. Maybe he can’t visualize words in his head, which is why he can’t spell. Maybe he’s going to always have to do things in a more complex, confusing manner than most people do.
Or maybe – just maybe – he calculates time the way he does because he grew up with a digital clock.
Reports cards just came home for the second quarter, inspiring me to recap the events of 7th grade.
During the first quarter, Dylan was on stimulants. He was on the honor roll with four A’s, 2 B’s and a C. His report card also reflects that he consistently completed his work, and turned it in on time.
During the first quarter, Dylan also had meltdowns after school that sometimes lasted an hour, sometimes four hours. He started talking about a deep and profound sadness, about his terrible new life in middle school, and about how he saw no real meaning in being on this earth.
So on the last day of the first quarter (a coincidence), Dylan went off of stimulants. The despair vanished instantly.
During the second quarter, Dylan was on a variety of relatively useless drugs. He took a high blood pressure medicine for the first half of the second quarter.
During this time, Dylan’s grades tanked. He rarely, if ever, finished his work. He lost the things he did – when pressed – finish. He turned in almost nothing on time, and certainly didn’t turn in his homework without being poked, prodded and pushed.
During the second half of the second quarter, with his medication adjusted to an anti-depressant, he stopped bouncing around as much. He was able to concentrate on rare occasions. He finished more (but not all) of his work, and still rarely turned in his homework, classwork, or even his take-home quizzes.
At the end of the second quarter, Dylan had 3 A’s, 3 B’s and a C. He’s still on the honor roll.
In other words, he got a B instead of an A in ONE CLASS (science) with the shift in medication. The real difference is the agony with which he earned those grades. Comparatively, first quarter was a breeze.
But would I put him back on stimulants? After the two-day trial during the first week of the third quarter – and the resulting horrific behavior – I would have to say NO – absolutely not.
He hasn’t done any homework, studied any algebra, worked with his tutor, or even cracked a book since the new quarter began.
As a result, he has two failing grades in science class. He failed a quiz miserably, and then got a failing grade on a writing assignment, which he doesn’t remember writing. But he got an A on his lab so, oddly, he already has a B as a cumulative grade.
Shane – who is graded in a particularly unorthodox fashion, thanks to a ridiculous new curriculum – got one I, two ES’s and all the rest P’s. There are about a hundred million P’s. Since Shane’s report card makes no sense to anyone, I can translate: Shane got straight A’s, except for two A+++’s and a B (in art).
I looked over the report cards, studied them for some sign that these pieces of paper indicated Dylan or Shane. But they didn’t. They were just letters on a piece of paper.
There were no cute comments about the funny things they said in class, or what subjects they enjoyed the most, or how happy they seemed. Just letters on a piece of paper.
And these letters will determine their future.
But only if we allow that.
I hung them on the refrigerator anyway.
On Monday, Dylan took his Strattera – now up to 54mg and still not having any effect on his attention. Then he took what the doctor calls a “kicker” – 5mg of stimulant – the same one he took for years, until he became unreasonably moody and depressed.
So Strattera is an anti-depressant that is now being used to treat ADHD symptoms. I guess the doctor figured that it would take care of the depression caused by the stimulants.
The doctor figured wrong.
Two days in a row now, Dylan has come home moody and irritable. He hasn’t been like this in so long, I was stunned to think it could really be related to the medication.
But today when he called himself “basically a nobody” and then went upstairs and slammed his door – that’s when I realized that there is NO successful stimulant “kicker” in the world that is worth this.
I called the doctor 12 seconds after the door slam.
“I haven’t seen him like this since the last time he was on stimulants,” I told the doctor, via her secretary.
“Take him off the stimulants,” they told me.
So our trial is already over, faster than it really began. And I have no hope for the future.
Odd how the stimulants can make me depressed.
Today Dylan took four pills. He may end up taking five next week, or he might drop down to two next month – but the dosage will be almost the same.
We’ve added stimulants back into the mix. Strattera is an anti-depressant-turned-ADHD-medication, and it does help curtail the bounciness. But putting him back onto Dextrostat – even at less than half his earlier dose, and even with anti-depressants to combat the possible crash – seems like a bad idea.
Dylan put all four pills into his hand.
“This is just weird,” he said. Then he took all four of them simultaneously – and congratulated himself on his ability to swallow all those drugs at once.
Sigh.
Unfortunately, it worked for years. Stimulants worked. Maybe, with this perfect drug cocktail, it will work again.
Meanwhile, I’ve been reading a book called The Out of Synch Child. It’s got oodles about vision processing disorder – among other things – which is what Shane has, and I was interested in reading it to get to the heart of what’s been going on with Shane.
But last night, with sudden clarity, I re-read a section about hyposensitivity to motion. It described Dylan so perfectly. Actually, when I’d read it the first time, it reminded me of Dylan. But now I’m wondering – what if he doesn’t even have ADHD? What if he’s just hyposensitive to motion and might need some other form of treatment, like Shane did for vision processing?
It’s something to look into today…
